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August 18, 2017

Day 23 post-IVIG

I cried on my way into work yesterday. This is not an unusual occurrence, as my fellow PANDAS and autism moms know. What was unusual is that I was crying tears of happiness. This has not happened in some time.

I cried about tomatoes.

(That Lady Gaga song...

July 23, 2017

Before my son Max was diagnosed with PANDAS this past year, I had come to believe that this was my Max. This anxiety and OCD and restricted eating and insomnia and meltdowns. I did not realize he was in the belly of the Bear.

I had made myself forget who Max really was,...

July 14, 2017

"I've also lost a son. Nothing compares to what some people in this room are going through. And as bad as losing a son is, you parents, some of you, are having to endure far worse suffering."

-Dr. Paul Hardy, 2014 New England PANS/PANDAS Association conference

Our son Ma...

May 16, 2017

I was at the movie "Titanic"  the night G overdosed and died. It was the winter of 1997 and "Titanic" was a pretty big deal. I wanted to see what all the fuss was about so I made my boyfriend take me. He wasn't happy because our friends were having what they called a w...