Just another manic Monday
Day #6 post IVIG #2 The Bear has sent in additional troops. Compadres in the war on our children. My son Max's younger sister and older brother have been diagnosed with PANS also. He is brutal and relentless. But we fight on. Max is doing better post-IVIG this time around. He was infused with IV vitamins after both rounds of IVIG and it prevented the headache and vomiting afterwards and made him less exhausted. The nurse managed to get an IV in him the second day although it
But the Resistance is Brave and Strong
Day #2 of IVIG #2 March 19, 2006 my son Mies had a "seizure-like event" that Children's neurology would never quite commit on. I was there for it and I'll go ahead and disagree. It was a seizure. It was a series of seizures. It was awful. Two days later I sat and held his hand and tried to comfort him as two nurses and a senior peds resident held him down while an intern performed a lumbar puncture on him to rule out various obscure infections like E. Equine and W. Equine enc
Please excuse Max's absence from school. He was fighting a Bear.
Day 37 post-IVIG The battle has moved to the Bear's high ground. The place every PANDAS parent fears: school. Iwo Jima, Gettysburg, Waterloo. A place of separation anxiety, tics in front of classmates, anger and weepiness, and perhaps worst of all, germs. Germs everywhere. A class full of walking talking petrie dishes swimming with strep and coxsackie and mycoplasma and colds and flu. We braced ourselves for what was about to come. As of late, Max has been up and down day by