Day 33 post-IVIG #2 The difference between a kid who just doesn't want to go to school and a kid with PANDAS is the number of tears the kid with PANDAS sheds when he finds out he won't be going anymore. It is not my son that doesn't want to go, It is the Bear within him. The lies He tells, The hold He has. His arms are just too strong right now. We're fighting. I swear to God we're fighting. But he's not letting go. How I hate those matted arms. The worn pads of His paws, cov

Day 15 post-IVIG #2 It was apparently PANDAS Awareness Day today. I was thinking PANDAS Awareness today was tomorrow until it hit me ten minutes ago. It has been that kind of day. Why? Because PANDAS. We have been in the trenches, matching the Bear's attacks with equal counterforce. He enlisted comrades and we expanded our arsenal. He divided our forces but we called in allies. We are gaining ground but not without casualties. Max is two weeks out from his second IVIG. In som

Day #6 post IVIG #2 The Bear has sent in additional troops. Compadres in the war on our children. My son Max's younger sister and older brother have been diagnosed with PANS also. He is brutal and relentless. But we fight on. Max is doing better post-IVIG this time around. He was infused with IV vitamins after both rounds of IVIG and it prevented the headache and vomiting afterwards and made him less exhausted. The nurse managed to get an IV in him the second day although it