Bear cubs in the New World (or, Dvorak as the antidote for the unending bombastic cacophony we call
Day #64 post-IVIG #3 As we drove in the car, Max was giving me one of his ongoing monologues on Tchaikovsky when I commented on his love...
A holiday wish for the warped, frustrated hospital we call Children's (Or, Risperdal, Adderall,
I volunteered at the Jimmy Stewart Museum in high school. This was before the days of high school students being required to perform a...
Hopefully the whale isn't a strep carrier (or, All you need is Love and antibiotics)
Day #1 post-IVIG #3 I had to work urgent care today and couldn't go to mass so I listened to "Salve Regina" in between patients. It has a...
"Hey, I'm not dead. But gee, my life sucks" (lamentation from the other side of the ra
Day 33 post-IVIG #2 The difference between a kid who just doesn't want to go to school and a kid with PANDAS is the number of tears the...
A House Divided Will Surely Fall (unless it's held up by PANDAS parents)
Day 15 post-IVIG #2 It was apparently PANDAS Awareness Day today. I was thinking PANDAS Awareness today was tomorrow until it hit me ten...
Just another manic Monday
Day #6 post IVIG #2 The Bear has sent in additional troops. Compadres in the war on our children. My son Max's younger sister and older...
But the Resistance is Brave and Strong
Day #2 of IVIG #2 March 19, 2006 my son Mies had a "seizure-like event" that Children's neurology would never quite commit on. I was...
Please excuse Max's absence from school. He was fighting a Bear.
Day 37 post-IVIG The battle has moved to the Bear's high ground. The place every PANDAS parent fears: school. Iwo Jima, Gettysburg,...
And a choir of angels sang the Hallelujah chorus right there in our bright green kitchen in Verona
Day 23 post-IVIG I cried on my way into work yesterday. This is not an unusual occurrence, as my fellow PANDAS and autism moms know. What...
the things they wrote
Day 10 post-IVIG The battle with the Bear rages on. New PANDAS symptoms have appeared. I'm pretty sure he's had every possible one at...
